Tuesday, February 9, 2010

Hands

We are home from the hospital after a nights stay for observation & Emma seems to be doing very well. The surgery took about 2 hours & Dr. G was very pleased & thought her hand/thumb reconstruction turned out better than he anticipated. He repositioned her thumb & shortened, moved some skin around on her hand to give her new thumb the wide span on her hand & that was all. He was planning on taking a tendon from her ring finger & attaching it to her thumb so it could be aposible but he said she already had muscles & tendon at the bottom of her hand so he used those.

Now unfortunately they did have to put a breathing tube in Emma during surgery but they had to use a smaller tube than normal due to her laryna malicia which probably helped her a lot. Her past complications & lack of O2 intake + poor breathing after surgery is why we had to stay over night but she did very well considering. She slept most of the time & thankfully slept all night until 8:30am this morning except when they had to check for vitals every 3 hours. Now Mama on the other hand, didn't sleep at all & is exhausted. As soon we got home I went straight to bed, tried to nap but was unsuccessful.

So far Emma isn't crawling with her cast on, she is scooting around on her bottom & isn't very happy about it. She is still pulling up to stand, although she is very wobbly since her cast is so heavy. (I will try to post pics of her cast so you can see how big it is). Pain wise, she seems to be doing well too. The only thing she has had so far today is some Mortin at 2pm & that is all. We do have heavy meds but we pain to give that to her at bedtime or if she seems really uncomfortable.

So she will be in her cast with decorated with green teddy bears (very few choices & most were bold/ugly colors) for 3 weeks & then he will continue to watch her from there. Dr. G did say she may have to have another minor surgery when she is around 8 to mobilize the growth plate in her new thumb or else it will end up being long than her fingers (since it is actually a finger reconstructed into a thumb). He will also continue to watch her right thumb since it is trying to turn inward & it has a small piece of extra bone floating inside.

Friday, February 5, 2010

Cousins

Yesterday Emma & I went to aunt Karen's house to spend time with my cousin Trisha & her two little ones Alex (2.5) & Carson (6 months). We all had a great time. Somehow Alex managed to avoid all the pics I took but Morgan was in most of them.

Emma & Morgan were fascinated by Carson's blanket

Me with Emma & Carson

Emma gently touching Carson's face but she soon started scratching her head, not sure why.

Morgan loved baby Carson & kept getting right in her face, sometimes kissing her.

I am not sure which if cuter, Emma in these glasses or Morgan's expression in the background.

Tuesday, February 2, 2010

Randomness

I discovered over the weekend Emma is cutting 2 more teeth, her back right molars (top & bottom). She also has a front top tooth coming in as well. Thankfully she isn't very fussy she just always wants her "papi" (paci) & if it makes her feel better I must admit we give in. Normally I don't give it to her unless she is sleeping, in the car, in church or out shopping but if it makes her more comfortable why not let her have it.

Emma had a great appointment at PT on Monday. She actually took several steps, several times with us either holding her hands or hips, plus she didn't fight us as she normally does. She has also been letting go while she is standing up next to furniture so it seems she is getting closer & closer to walking.

I took Emma for her pre-op hand surgery appointment today & was surprised how fast it was. I am used to several hours of testing & waiting but we were out of there in 1 hour + they didn't even have to run any labs. They of course weighed Emma & she is 19.12 lbs completely dressed (including shoes). YAY!!! They actually tittered with the idea of keeping her over night, just for observation, after hearing all the previous heart surgeries she has had but they are pretty sure it will still be same surgery.

Oh & yes we did get snow this past weekend, I am just way behind on posting. We got 3-4 inches on Friday & it stayed all weekend, they even cancelled both services at church on Sunday. Needless to say we all got cabin fever & were ready for it to melt.

Wiiing Cousins



Isn't this a precious face, messy hair but still precious

Our snowy cul-de-sac

Our house, the white snow really shows that its time to powerwash the house again, it should be white like the snow.

This is the spot Chris raked off for Spencer so her would go potty outside. He was not digging the snow at all & wouldn't leave the patio before the grass magically appeared.

Emma & her buddy Zoie. She is the only one of our pets who will let Emma pet her.

Monday, January 25, 2010

Sweet Baby

No this time I am not referring to Emma but 8 month old baby Josiah who went to be with Jesus. He is a baby that was in the PCICU while Emma with there & he lost his battle with HLHS. Although we didn't know Josiah or his family personally we followed their story & our hearts ache for them right now. Please keep the Wilson family in your prayers as they deal with this great loss. You can read more of his story "The Wilson Heart".

Sunday, January 24, 2010

14 months old

Actually I am a bit behind in posting so she's 14.5 months now. I have been a bit busy getting caught up on things around her & trying to take some pics of Emma.

Emma is doing great. She is very active, not walking yet but pulling up & cruising around on everything. She seems to pick up a new word every day or so. The new words from this past week were: puppy, out, green beans, Spencer (or some variation of his name) & she is saying please & thank you pretty good too, sometimes without us reminding her. We also discovered over the weekend she is cutting another tooth on the top left in the front.

Emma still isn't eating as much solids as we would like but she is slowly getting there. She loves green beans & I mean real ones but she will eat the baby food ones too. She still has a lot of issues with textures of most table foods but at least she will try most anything she just doesn't want to eat. Luckily that Pediasure if filling in those gaps.

She really loves all her riding toys & wagon. She asks Chris every night when he gets home to pull her around the house in the wagon or to be pushed on in her car or now her new Elmo Flying Plane (from Grammy & PawPaw). He has created a little monster but I think he enjoys it too. She still loves her books, shape sorters, Little People playsets & stuffed animals (she wrestles with them, not real sure where she learned that but its pretty funny).


Emma with Little People, Noah.

Emma on her new Elmo Flying Plane & a messy living room filled with toys.

Look at my chapped mouth from all the drooling & paci sucking from cutting my new teeth. Its all better now, thanks to Vaseline.

YAY Jamma time!!!

A wagon ride with cousin Morgan

Wednesday, January 20, 2010

EENT

Today Emma had a follow up visit with our local eent & it turns out she has reflux & laryngomalacia (soft layrnx) . At first when he heard Emma's symptoms, he thought it was probably vocal paralysis (he says that is very common after cardio surgery, something about a nerve that gets hit during surgery that can cause paralysis) & I told him that sounded familiar but the drs at MUSC quickly ruled that one out. So after discussing things a little further, he decided to scope her so he could see for himself & he found reflux & larynogmalacia. Her larynx & vocal cords are 3 times the size they should be which is odd for a child of her age (it usually goes away no later than 12 months) & he isn't sure either why she never showed any signs of it before her surgery in Dec.

So he prescribed Prevacid & took her off the Zantac. He says Prevacid works much better. I of course told him how much she hated Prevacid from past usage & he gave her dissolvable flavored tablets. He says kids love them & say they taste like candy or a sweet treat. I of course haven't given her any yet so we will see tomorrow how it goes.

Tuesday, January 19, 2010

Hand Surgery

Emma's hand surgery has been scheduled for Feb 8 @ 8am at a local hospital. I think she will be his first one of the day, especially since she needs to be there at 6am. We of course were not expecting it to be scheduled so soon, Dr. G thought it would be mid-late Feb but this date is fine with us too. The sooner she has this surgery to sooner we can all move on & hopefully stay out of the OR. We have definitely had our share of surgeries with Emma.