Wednesday, June 29, 2011

Let's Play

We seem to spend a lot of time outside these days, even though its SO HOT, Emma loves it. You can find us in the back yard in the mornings before lunch or in the evening after dinner watching Emma play with her sand/water table or in her giraffe pool (her 2 favs right now). 

 Riding her tricycle at Grammy & Paw Paw's. Her feet finally reach the petals.

 Pool time

 Playing with her sand/water table

Notice the red patches on her face in this pic & the next one. This is some mysterious allergic rash that showed up about 2 weeks ago & we still haven't found the cause. Thankfully it doesn't itch or bother her, it just looks bad & flares up randomly.

Tuesday, June 21, 2011

Another little angel

I just saw that one of the blogs I follow of a fellow heart baby lost her battle on Friday, June 17 & went to be with Jesus. Little Lindsay Dean was 3 years old. Please keep this family in your prayers. 

Feel free to read more about little Lindsay

Friday, June 10, 2011

Annual Cardio Appointment

On Monday we took Emma for her annual cardio check-up & I must say she was scared from the moment we walked in the door & the receptionist spoke to her. The poor thing knows that place all to well but she did okay considering how scared she was.

They did an EKG, then Dr. O came in to listen to her & then he told us he was hearing something different + seeing something on her EKG, so he definitely wanted to do an echo. She of course wasn't happy to go in the echo room once she saw the table she is suppose to lay on so the tech said I could hold her & they played "Elmos Goes to Grouchland" for her to watch during the echo. Of course they always let her watch a video of some kind but this one of her favs which helped a lot.

After the echo Dr. O came in to review the images & at this point I am always very nervous. He told us he saw some leakage in her tricuspid valve which concerned him. Now she has always had some leakage but it has gotten a little worse since the last echo she had. He also found a tiny leak on one of her patches which is not a big deal right now, but he will continue to watch it. But with the leaky valve he wants to see her back in 6 months to take another look to see if there is any change. Depending on what he finds in Dec he may order a sedated echo or echo scope to get better images. 

Now of course this was not the news we were hoping for & I started crying immediately. I really thought/hoped we were done with bad news about Emma's heart, but hers in such a rare case you just never know. Dr. O did continue to tell us that its not huge leak but more than he would like to see so he wants to keep a watch on her. Gotta love Dr. O & how he takes care of our Emma. He also told us that worst case is she would need surgery to repair her valve but we are no where near that, he was just keeping us informed. 

Saturday, June 4, 2011

May 2011 Beach Trips

Yes, there were 2 beach trips in May, actually 2 weekends in a row. Emma now thinks we are suppose to go to the beach every week. She is so confused now & keeps asking to go back.

We had a great time Memorial Day weekend & the weekend before. Our first trip with just me, Emma & my mom Emma was quite scared & wouldn't get near the ocean. But when we went back Memorial Day she was scared at first & then she wanted to play in the ocean the entire time, as long as someone was holding her. Unfortunately I didn't get any pictures of that, especially since she played in the ocean with cousin Caroline. But I guess we can't pictures of everything, maybe next time.

 Emma sitting on the small concrete deck support at the beach house. 
Her tiny bottom actually fits.

 Emma helping Nana hammer the nails back into the deck at the beach house.

 Chris's sidewalk chalk creation

 Playing bubbles with Daddy

Playing with cousin Caroline