Emma has had 2 follow up appointments this week, one with her pedi & the other with her cardiologist. Her pedi, Dr. K, thought Emma looked great & sounded great. Emma only has a very slight murmur if any, which is much much different than before. Emma is also eating as much as she was before her surgery in Oct & she has been since we got home from Charleston last week. She got her RSV shot while we were there & we are going to switch her to Pediasure as her milk. Right now she is still getting formula in her bottle but we are giving her Pediasure in a cup at meal or snack time, which isn't going very well. Emma just isn't interested in drinking from her cup at all & when she does its only a few sips. Our main goal right now is to get Emma to gain some weight & how we do it (bottle or cup) isn't as important.
On Wednesday we saw, Dr. O, her cardiologist & he was very pleased with Emma. The notes her received from MUSC said they patched all the holes except 2 very tiny ones & those didn't show up on the post surgery echo. Dr. O did his own echo & he didn't see any holes or blood flowing across the heart. He showed me wear the very large hole in the apex was, its gone, where all the other holes were, there gone. He told me that Emma's case was a very hard one since she had so many holes everywhere & he was very impressed that Dr. B was able to fix them (we all know WHO is really in charge & who assisted Dr. B in his craftmanship). Dr. O also decreased Emma's Lasix to once a day & said he wants to see her again in one month, then he said if all is good he wouldn't have to do another follow up for six months.
Is it possible that our baby girl's heart is normal or at least as close to normal as it can be. You better believe it. We have prayed, cried, wished & hoped the day would come when someone would tell us she is really going to be okay & Dr. O says we are almost there. All we have to do is hold on for one more month to make sure no infection sets in & this will all be behind us. Could we ask for a better Christmas present? Not at all. GOOD IS SO GOOD!!!
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