Home Sweet Home

Yes we are home from MUSC Children's Hospital & I am not sure who is the happiest, Emma, Chris, myself or our cats (we haven't picked up Spencer yet from the in-laws). Regardless, we are all looking forward to sleeping in our own beds & not being woken up every 3 hours by someone needing to take Emma's vitals. Emma got to the point that every time the door opened in her room she would cry, regardless who was on the other side, poor baby.

The word on Emma's heart is that there are no residual VSD's & they didn't hear a murmur anymore. Her last echo on Tuesday showed no VSD's which means that either they were too small to register or the two that were left have already closed. Either way it doesn't really matter because there was no blood flowing across the heart which is a good thing. Her feedings should now start to pick up & her weight should start to climb.

The only issue with Emma right now is the vent apparently damaged her larynx & it may take 4-6 weeks for it to completely heal. She is really hoarse & is coughing a lot but there isn't really anything that can be done for it. If they give her steroids it will only delay the healing process of her heart & incision. They also told us that Emma may have had a narrow airway, which is very common in babies but you sometimes don't find out until something like this happens. She is to have a follow-up appointment with the ENT in 6-8.

Emma also has a follow-up appointment with her local cardiologist next week + she will need to get her next RSV shot. She will also start back on her physical therapy which has really helped her out a lot. Before we left for Charleston she was pulling up & cruising on the furniture in the living room. Emma's therapist is going to be so glad when she hears. She has already tried pulling up yesterday & today but she isn't quite strong enough yet, which makes her mad. Poor thing, she doesn't understand but she will return to herself very soon.