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Thursday, February 12, 2009

Heart Cathe Update

Emma did go to MUSC Children's Hospital in Charleston & had the cathe done, she did great. It only took them about 1 1/2 hours & she didn't have to stay overnight. She was discharged by 5pm the same day.

We did find out that Emma is going to need surgery in the next 2-4 weeks. The VSD's (holes in her heart) are pumping too much blood to the lungs & causing the lungs to have 4 times as much pressure as it normally would. So it is as if Emma is running a marathon 24 hours a day & that is why she is burning off so many calories, her little heart & lungs are working overtime.

So the surgery they have planned will be inserting a band around her pulminary artery to reduce the pressure to her lungs. This band is temporary while they wait & see if the VSD's in her heart close on their own. She will wear the band from a few months to up to her 1st birthday, it all depends on how she grows, gains weight & if/when the VSD's close.

Emma will be in the hosptial for about a week & the surgery will be done in Charleston at MUSC. They have one of the best Children's Hospitals in the country & the Pediatric Heart Center has some of the best technology available. The staff we encountered while we were there on Tuesday were outstanding & I know they will take good care of Emma.

Emma nappying yesterday with her Glow Seahorse, her favorite toy. It helps her go to sleep almost every night & she just love it.

2 comments:

Anonymous said...

What a precious pic of a precious baby! She is adorable! Hope that all will go well with her upcoming surgery and glad you like the drs so much. Has to be good to know some answers, and know that there is help for her. Give her a kiss for Mimi and keep us posted, please!

Keysgal@QuietWater said...

I am Kristi's Aunt Pat from Florida. My thoughts and prayers are with your little family as you travel through this difficult time. What a precious little girl is Miss Emma. It is comforting I am sure knowing that you have wonderful doctors to care for your little one. We will certainly look forward to hearing good reports as she progresses. God bless.