Today Emma had follow up appointments with her pedi & cardiologist & she did really good considering she just got home from the hospital & being poked at constantly. Dr. O, her cardiologist did his own echo of her & his findings were pretty much the same as Dr. R's at MUSC. Emma still has at least 4 holes that they were not able to patch & 1 which is larger than the other 3 that they are a little concerned about. They plan on monitoring her to see if they will close on their own which they are pretty sure they will but the larger one may not. If they start to cause her problems we will have to go back to MUSC to have another procedure but hopefully not open heart surgery again. They are thinking it can be patched with a device via heart cathe which is much less invassive.
Now as for her not eating well, Dr. O & Dr. K are both hoping that will turn around in the next few days to a week. They both told us to cut back on her Hydrocodone since it can be an appetite suppressor & rely mostly on Tylenol. Nobody told us her pain meds would effect her feedings, so we were a little shocked & plan to only use it at bedtime.
We also found out that our little girl now a whaopping 18 lbs. We were at the hospital the last time they weighed her, which was Saturday, she was 18 lbs, 11 oz & we all laughed. She was still very puffy from all the fluids & we knew that wasn't correct. When she arrived at the hospital she was 17 lbs, 13 oz & I knew she had not gained almost 1 lb is less than a week with very little to eat.
Emma's next appointment with the pedi is in 2 weeks for a weight check, follow up vaccines for RSV, flu & maybe H1N1 (if available) & her 1 year vaccines. Her next appointment with Dr. O will be in one month & he hopes to decrease her Lasix to 1 a day.
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