We left the hospital last night at 6:30pm & we are all very glad to be back. I walked in the house last night carrying Emma she started smiling & waving & when we went up stairs to put on her pjs & a clean diaper she smiled & waved again. It made me so happy to know she was glad to be home. Yesterday was a hard day on Emma with all the tests + one final procedure to remove her pacemaker wires & nothing we did made her happy so we were so glad to get her home to sleep in her own bed.
Today Emma has been very tired but has really enjoyed playing on the floor, chasing the cats & crawling again. She has been trying to pull up but she is having trouble with it. I am not sure if it hurts or if she just doesn't have the strength yet to do it but she will be back on track soon. She will go back to therapy again next Monday & hopefully it won't be too hard on her.
Tomorrow she has follow-up appointments with her pedi & cardiologist & we are eager to hear what they have to say. She isn't eating very well & we are a little concerned about it. Dr. R that discharged her said her feeding could pick up as soon as today & that every child is different. We do remember that in March after her PA band surgery it took 4-6 weeks before her feedings turned around & we are hoping it won't take that long this time.
We would like to thank everyone for all their kind words, thoughts, prayers & cards. It is great to know that so many have thinking of us during this time. Thanks also to the MUSC Children's Hospital Heart Center for taking such good care of Emma once again. God is good!!!
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