It has been a long week for us but is now stable enough to be in his own room & out of NSICU. The diagnosis on him is not very good which is not what we were hoping but at the same time we were not surprised either. There is really nothing can do for Daddy at this point or at all. There is no corrective surgery that can or should be done to stop the bleeding or correct any damage the stroke may have made. The tumors Daddy has & we have known about since this past summer has grown aggressively & that is what causes the stroke & brain bleeding. This also was not a surprise to us, we just didn't think the tumors would grow this fast & neither did his neurosurgeon. But Daddy's case is in no way a text book case, it is one like none other so they have no standard to go by. The doctors are pretty much making decisions as we go & suggestions as we go.
When we meet with the doctor late Monday afternoon & he brought us the bad news he also told us that we need to start preparing ourselves for an end of life situation. He can't tell us how long he as, again since Daddy's case is so rare there is nothing to compare it to for an estimated time of life. So we made some hard decisions & much to our surprise Mama has already made a lot of arrangements. She didn't want us as a family to have to make all the decisions in the last hour. The doctor also suggested that we have a feeding tube peg placed in Daddy to use at a later date if we need it. He doesn't need one right now but at least we will not have to come back to the hospital to have one placed at a later date. The tube was placed yesterday.
Daddy's state right now is that he is stable. There is not breathing tube, he is awake but not opening his eyes very much. He will follow commands when prompted & will sometimes open his eyes & speaks on occassion - although if you didn't know him or his groggy voice you would think it was just jiberish. He of course is not getting out of bed, but he didn't to that before he had a stroke so there is no change there. He will be going back to the nursing home & hospice has already been called to come assess him. We are hoping they can assist the nursing home in his care & the nursing home is very happy to have him back. Daddy's bed is still available & waiting on him.
Please continue to keep Daddy, our family, the hospital staff, doctors & the nursing home staff in your prayers as we transition to the next stage with Daddy. Thanks so much for everyone's kind thoughts & prayers thus far, we really appreciate it.
When we meet with the doctor late Monday afternoon & he brought us the bad news he also told us that we need to start preparing ourselves for an end of life situation. He can't tell us how long he as, again since Daddy's case is so rare there is nothing to compare it to for an estimated time of life. So we made some hard decisions & much to our surprise Mama has already made a lot of arrangements. She didn't want us as a family to have to make all the decisions in the last hour. The doctor also suggested that we have a feeding tube peg placed in Daddy to use at a later date if we need it. He doesn't need one right now but at least we will not have to come back to the hospital to have one placed at a later date. The tube was placed yesterday.
Daddy's state right now is that he is stable. There is not breathing tube, he is awake but not opening his eyes very much. He will follow commands when prompted & will sometimes open his eyes & speaks on occassion - although if you didn't know him or his groggy voice you would think it was just jiberish. He of course is not getting out of bed, but he didn't to that before he had a stroke so there is no change there. He will be going back to the nursing home & hospice has already been called to come assess him. We are hoping they can assist the nursing home in his care & the nursing home is very happy to have him back. Daddy's bed is still available & waiting on him.
Please continue to keep Daddy, our family, the hospital staff, doctors & the nursing home staff in your prayers as we transition to the next stage with Daddy. Thanks so much for everyone's kind thoughts & prayers thus far, we really appreciate it.
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